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Tuesday, April 14, 2009

Connor's NICU Timeline

While Connor was in the NICU, I kept a running status list of his current developments listed on our blog, in the sidebar.  The brief status updates served those who were checking in on our blog, more often than I had time to update.  Reading through it now, it's a synopsis or a timeline of his eventful 120-day stay in the NICU.  This is that list (in reverse order):
  • 04/14/09 Sodium starts at 147, ends at 146. After a 120 day stay, CONNOR COMES HOME!
  • 04/13/09 IV fluids stopped. PICC Line #3 pulled. Suture sticks removed by surgeon. Continued weight gain.
  • 04/12/09 First Easter. 8lbs, 6oz / 19.88" Still on IV fluids. Discharge Monday night or Tuesday.
  • 04/11/09 Gains another 3 oz. Still on IV fluids. Discharge hopefully on Monday.
  • 04/10/09 Starts IV fluids, sodium & potassium levels begin to stabilize. Gains 3 oz back. Discharge hopefully Easter Sunday or Monday.
  • 04/09/09 Connor loses nearly 7 oz. Discharge for Good Friday CANCELLED. Completely dehydrated. Switched from 24-cal formula, back to 22-cal.
  • 04/08/09 MRI. Mommy & Daddy sleep-over.
  • 04/07/09 Photo shoot with Harriet
  • 04/06/09 Antibiotics all done!
  • 04/04/09 Nurse says he's home WITHIN THE WEEK... by Good Friday!!!!!
  • 04/04/09 Feedings are all PO Ad Lib. IV nutrition stopped - PICC line now hep-blocked. 8 lbs, 8 oz.
  • 04/03/09 Nurse says he could be home in 2 weeks... 2 WEEKS!
  • 04/03/09 So far so good... nasal cannula gone, nearly all feeds today PO, up to 70 ml per feed. IV nutrition modified to wean.
  • 04/01/09 Over 4000 grams! 8 lbs, 13 oz. Up to 60ml per feed and occasionally takes entire feed by mouth.
  • 03/31/09 No cannula for 17 hours. Up to 50ml per feed.
  • 03/30/09 8 lbs, 8 oz. / 19.7"
  • 03/29/09 Up to 30ml per feed. Moving back to the step-down side tonight!
  • 03/28/09 Third day of negative cultures! PICC line #3 good to go after 3 attempts over 6 hours.
  • 03/27/09 Off CPAP, back on nasal cannula. Feeds restarted today. PICC line #3 insertion FAIL.
  • 03/27/09 Second day of negative cultures... so far so good!!
  • 03/26/09 First day of negative cultures... 1 more to go!
  • 03/26/09 They're calling it sepsis...
  • 03/26/09 Connor put on CPAP machine, blood gases a little off, this is to help with the bradys/desats. Completely NPO.
  • 03/25/09 Bacteria found in blood & urine, PICC line pulled, lots of bradys/desats
  • 03/24/09 Connor develops major infection - gram negative rods in bloodstream
  • 03/23/09 Discharge plans begin!
  • 03/20/09 Bottle feeding EVERY feed, 50% PO / 50% NG
  • 03/19/09 VCUG shows no reflux
  • 03/17/09 Connor moves to the step-down NICU!
  • 03/16/09 7 lbs, 13 oz / 19"
  • 03/16/09 Bottle feeding 3x/day, 45 ml/feed
  • 03/12/09 Bottle feeding begins again - 2x/day
  • 03/11/09 Newspaper photo shoot & video swallow study (inconclusive)
  • 03/10/09 Officially over 7 lbs!
  • 03/07/09 Bottle feeding stopped - all feeds by NG tube
  • 03/06/09 Desatting issues - back on nasal cannula
  • 03/03/09 1st time feeding from a bottle EVER, 1st time w/ breastmilk since Christmas
  • 03/02/09 2nd attempt at feedings
  • 03/01/09 6 lbs, 1.5 oz / 18.9"
  • 02/28/09 Off the nasal cannula and breathing 100% on his own!
  • 02/27/09 ROP officially regressing
  • 02/26/09 Extubated and in a swing!
  • 02/24/09 1st attempt at feedings - unsuccessful
  • 02/23/09 5 lbs, 6 oz / 18.75"
  • 02/22/09 Surgery #3 - Laser Eye Treatment for ROP
  • 02/21/09 He POOPED!
  • 02/16/09 Surgery #2 - Remove ostomies and reconnect intestines
  • 02/13/09 Eye Exam - ROP, Stage 3/Zone 2 with early Plus disease in both eyes
  • 02/11/09 Cranial Ultrasound - IVH much improved! L - nonexistent, R - negligible
  • 02/09/09 Postponed - Surgery #2 to reattach intestines, due to possible infection brewing
  • 02/04/09 Connor is officially over 4 pounds! (4 lbs, 2oz)
  • 01/30/09 Connor graduates to an open crib!
  • 01/23/09 Wound Vac removed! Mommy gives Connor his 1st bath since birth
  • 01/16/09 1 MONTH OLD
  • 01/14/09 Eye Exam - ROP, Stage 2/Zone 2 in both eyes
  • 01/13/09 Connor switches from the ventilator to the nasal cannula
  • 01/09/09 Connor develops major UTI w/ E Coli in blood - gram negative rods found
  • 01/06/09 Wound Vac installed due to incision deteriorating to open wound
  • 12/31/08 Surgery #1 - 20 cm of intestines removed due to NEC, given 2 ostomies
  • 12/26/08 Connor develops NEC, put on ventilator
  • 12/22/08 Connor rolls over in front of Daddy & Grandma R.
  • 12/21/08 Cranial Ultrasound, IVH discovered - R Level III, L Level I
  • 12/20/08 Mommy holds Connor for 1st time
  • 12/19/08 Mommy able to see Connor for 1st time since birth
  • 12/17/08 Daddy holds Connor for 1st time
  • 12/16/08 Connor born at 9:43pm, 13.75", 2 lbs 6 oz

3 comments:

Anonymous said...

Your time line looks almost identical to ours! Your Connor is adorable and a miracle too. There is something infinitely precious about children, but when you have to fight as hard as ours did to stay on Earth, you know they are truly miracles.

doodlebuddies said...

My third and last baby was just as much a miracle. His trauma was while he was in my womb becoz I has placenta previa and everyday spontaneous bleeding was a nightmare ! He was born borderline 7/8th month and believe you me, his life as well as my life were nothing short of a miracle. Infact my life was the one that took the maximum toll ~ in a life saving attempt,a number of organs had to be removed. 8years later, What matters is that we both are alive and in good health.
Connor has really fought his way to keep alive but that poor baby suffered so much !! My heart goes out to him and little angels like him. Your a very couragous woman. But frankly, like they say, God only gives us, What HE Thinks we can endure. Lots of love to little connar.
please feel free to pop over at www.doodlebuddies.wordpress.com or
www.naush.wordpress.com
God bless your beautiful family
Love
Naush

Anonymous said...

Wow, this picture has brought back memories & images for me. Jan. 18. 1980 my oldest daughter was born 3 months premature. 2lbs. 15oz. 15in. long. No problems Thank God! Waited 7 long weeks for her to reach 5lbs. so we could bring her home. Now, she has given us 5 grandkids. Techno, wasnt what it is today so I know the good Lord was watching over her. Thanks for sharing and giving me some awesome memories today.
Debbie

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