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Tuesday, March 10, 2009

85 days old...

Cuteness - March 8, 2009

OK... I apologize for that last post. I let the blechs of our situation get the best of me... no more Debbie Downer! It doesn't do me any good.

(BTW, thanks for all of your encouraging comments and e-mails!)

I had a great chat with one of our favorite neonatologists the other night. He stopped by Connor's bedside to address some concerns I had about a drug they might potentially use to treat the reflux (if that's what he has). Nearly 25 minutes later, I was convinced and feeling much more positive about things... Connor has come a very long way and is receiving the best care possible. His nurses call in to check on him on their days off, and his neos brainstorm what could be wrong with him in their off-hours. We just need to keep our eyes open for the light at the end of the tunnel... here's hoping it's just around the next bend!

Another perspective photo...
The hospital gave us this "unofficial" birth certificate today.
Check out the size his feet once were (they've grown almost another inch!).

Let's see...

Today Connor is 12 weeks old... it's amazing how time has both dragged and flown by. We've now gone to the hospital more than 170 times, and could drive the 2 miles in our sleep! (So grateful we live so close.)

As of last night, Connor weighs 3174 grams (6.9974722 pounds) - just 1 more gram (which we expect tonight) and our little micropreemie (born at 2 lbs, 6 oz) will be 7 pounds. We can hardly believe it!

UPDATE: Tonight's weigh-in: 3290 grams (7.25 pounds)

He's up to 18 ml (0.63 fluid oz) on his feeds, every 4 hours (he'll be at 20 ml or above tomorrow). One nurse told us he'd have to be up to 70 ml (2.47 fluid oz) per feed before he can go home. Slow and steady wins the race, right?

Tomorrow, Connor will be FAMOUS! We've signed a release to allow a local newspaper (not sure how local) to come photograph our little guy for a story on the future of nursing, how the hospital brings in high school students to shadow RNs. Not sure what exactly it will entail, but we figured it would be something nice for his virtual scrapbook.

They can't determine why Connor is continuing to have desats. He's still on the nasal cannula, but requiring low flow and oxygen levels. He's had samples taken for bacterial and viral (RSV) cultures. All kinds of bloodwork and bood transfusions have been given. He's had chest films and head ultrasounds taken. They stopped p.o. feeds last week, and everything is going through his NG tube. Each feed now stretches out over the course of an hour, to see if that helps, and his crib mattress is set on an incline. The desats are always self-resolving, and have at least begun to decrease in frequency... but they're still occuring enough for him to need the nasal cannula. So far, everything is kinda pointing towards reflux.

After his photo shoot tomorrow, Connor will have a video swallow study performed. I'll be able to be there with him, and I'm expecting he's going to pretty much hate it. Wish us luck!

Sly smiles - March 5, 2009

My view - March 6, 2009

Extreme close-up! - March 6, 2009

Lanugo all gone... that hair's all his - March 8, 2009

Whatchu lookin' at? - March 8, 2009

Lately he just LOVES getting his temperature taken - March 9, 2009

Peek-a-boo! - March 8, 2009

Father and son - March 8, 2009

Bath time - March 8, 2009

Peaceful - March 8, 2009

Calm - March 8, 2009

Pensive - March 8, 2009

Sweet - March 8, 2009

Heaven - March 9, 2009

5 comments:

veronica said...

Oh Aimee, he seems so BIG now! But I guess it's all relative.
And those cheeks! How do you manage to keep your lips off them? :)
I think of you often and continue to pray for little Connor.

Anonymous said...

Hey Brian, Aimee, and Connor, I continue to pray for everyone and can't wait to see my little nephew, I hope he gets to come home soon and I hope you are getting some sleep.

Uncle Jason

Audrey said...

I'm so glad you posted all of those pictures! He is so cute!!! As sad as it is to see him cry, those are my favorite pictures with Darbi because it shows she's got fire! :)

rae said...

Grow baby Grow!!! He is huge... Sam was only around 5 pounds when he came home at 12 weeks... unfortunately he was only home for 6 days before having to go back in... but that is awesome. WTG Connor. I know you guys are really anxious about him coming home but believe me... You don't want to turn around and go right back in. Hang in there... you will all be home and together soon.

And I suppose that most of those clothes I sent will be much too small for him. Please just pass them on to another preemie in the hospital when you are through with them.
hugs to all
rae

Megan B said...

I just want to squeeeeeeze those cheeks and lay big slobbery kisses on them!

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